Hi I'm Ali my youngest daughter has jia

[naps1701]

She was diagnosed at 3yrs old, the last 4yrs have a long hard road 4 all of us especially her. I have had 2 try n control my emotions when I watch her try n do the things her friends r doing n she tries but can't do it. I'm glad she does try n her friends encourage her when she is trying. She is a very outgoing little girl she is kind n friendly n has lots of friends. It is soooooooo hard 2 c r children struggle with this disease, but they r strong sometimes I think my daughter is stronger than me when it comes 2 jia she takes it all in her stride. She is on naproxen n has been since diagnosis but I am finding this is losing effect on her. We live in the UK

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[Jess]

Hi naps1701

Welcome to the forum

I'm based in the UK too!

Jess

[naps1701]

Jess it's nice 2 c that u r from UK 2 as most of the groups I have found r based in USA

[Jess]

Exactly!!
Which is why I decided we needed something based in the uk